A major factor fueling my recent fanaticism of the band Muse is that I identify very strongly with the themes of their songwriting. One such theme is empowering the weak and unjustly subjugated to rise up against the overwhelming machinery that enslaves them. Or, quicker to the point, Joseph Cambell’s heroic cycle.
Empowerment is a huge issue with me. As long as I can remember, I have craved security above all other things. For the most part, a desire for security and stability is a good thing, but in large quantities destroys one’s ability to take the risks that are necessary to achieve one’s dreams. There is a balancing act here, perhaps even a dichotomy: security vs. risk. Too much on either side leads to disaster. In my case, my desire for security drains my will to achieve my dreams and leaves me disempowered.
The result is that I feel stuck in the belly of the whale, and as the wife once observed, I stay there because I want to be there. It’s safe and warm and cozy. It’s far easier to gripe about how things have turned out than to effect the change necessary to live the life I wanted.
Part of empowerment is understanding the relationship between what one wants and what actually happens in life. I believe that we go through a grieving process when we find that what we get doesn’t quite match up with what we wanted. Our dreams are an idyllic picture of the life we think will make us happy, and when things don’t live up to it, we grieve it as though it has died.
The lyrics to Muse’s Starlight sums this up far more succinctly and beautifully:
Our hopes and expectations
Black holes and revelations
While the idea of losing our hopes to a black hole’s void might be a little unsettling, there is a sense that one’s hopes and expectations are what initially lead us to a certain path in life, and the twists and turns of that path ultimately lead to revelation about what one truly needs for happiness.
I find this sentiment to be very relevant to raising a child with special needs. I’ve had a hard time wrapping my head around the autism bomb. I didn’t have any experience with babies before my son, so I had no idea what normal development looked like. Since my son is high-functioning, all the diagnoses were inconclusive. Not autistic, but just kind of. Just enough to place some serious obstacles in his development. And just enough to trigger the normal parental guilt: was there something we missed in his early development?
Throughout all this, I have fermented some very bitter feelings about other people’s families. On the one hand, I have been jealous of others’ normal babies; on the other, I’ve felt guilty because our son is so much better off than other children who are farther along the autistic spectrum. And I have unjustly felt that people raising normal children have it so much easier than we.
Only in the last couple of months, after observing normal babies’ development, have I begun to fully realize how different my son is, and how wrong my feelings have been. There was nothing we did that caused his condition. And raising a normally developing child is no more easy or difficult than a special needs child. All families have their challenges, and raising a child with special needs only presents a different set of challenges.