Archive for the ‘Parenthood’ Category

the slow death of imagination

Monday, September 22nd, 2008

Remember The NeverEnding Story? The movie about a boy who must save a mysterious kingdom of imagination from The Nothing? Sadly, I think the premise of that movie applies more and more to the world our children grow up in today.

The United States is entering a crisis of imagination. The risk is very real: if we don’t encourage imaginative play in our children, we’ll get a generation of adults without creative problem-solving skills. The ability to invent is possibly our greatest economic advantage in the global economy, and the problems we face today are in desperate need of creative solutions.

There are a couple of things I see today that are contributing to the erosion of imaginative play in children. The first is that their geographical roaming areas are shrinking. The second is the increasingly strict (micro-)management of our children’s time: more homework and more structured extra-curricular activities. A creative, imaginative, healthy mind is being crippled by over-emphasizing the role of rote memorization in the process of learning.

The following are some links* to articles that demonstrate what I’m talking about:

EDIT: Today I see another related post on BoingBoing: How Children Learn. Talks about the classic series of 2 anecdotal books by John Holt describing how children do and don’t learn.

* Note: credit to BoingBoing for originally finding and blogging the links. I just assembled them here cuz, y’know, they’re kinda related and all

Piano noodler part deux

Monday, May 19th, 2008

Almost a year ago, I posted about my son’s ability to plunk out Twinkle Twinkle Little Star on the piano.

His interest in the piano had tapered off for a bit, but in the last month or so he’s come around to it again. Up until now, his only interest was Twinkle Twinkle. But now he’s figured out how to play This Old Man, Frère Jacques, Jingle Bells, and this morning he figured out most of the Battle Hymn of the Republic. Oh, and London Bridge too.

Not only that, but he has also begun to harmonize. This morning, he played Twinkle Twinkle and added the 5th note of the scale below each note. I watched him playing in the key of G, and on the harmony he knew to play F# instead of F!

About a month ago I believe he was experimenting with modes of scales. He played Twinkle Twinkle in the key of C, but moved it up a note each time. So he started in Ionian, then played the tune in Dorian, Phrygian, Mixolydian, Lydian, Aeolian, and Locrian. While they all sounded strange, I think he was truly absorbing the different flavors. I say this because later I caught him doing the same thing, but instead of using the modes of C he started on the 2nd note of each scale and played it correctly: he played the tune in C major, then D major, then E major, then F# major, and so on up the keyboard. There were some keys that gave him trouble but for the most part he’s very good at finding all the sharps and flats that make the melody work in each key.

Needless to say, I’m very proud.

Black Holes and Revelations

Tuesday, January 8th, 2008

A major factor fueling my recent fanaticism of the band Muse is that I identify very strongly with the themes of their songwriting. One such theme is empowering the weak and unjustly subjugated to rise up against the overwhelming machinery that enslaves them. Or, quicker to the point, Joseph Cambell’s heroic cycle.

Empowerment is a huge issue with me. As long as I can remember, I have craved security above all other things. For the most part, a desire for security and stability is a good thing, but in large quantities destroys one’s ability to take the risks that are necessary to achieve one’s dreams. There is a balancing act here, perhaps even a dichotomy: security vs. risk. Too much on either side leads to disaster. In my case, my desire for security drains my will to achieve my dreams and leaves me disempowered.

The result is that I feel stuck in the belly of the whale, and as the wife once observed, I stay there because I want to be there. It’s safe and warm and cozy. It’s far easier to gripe about how things have turned out than to effect the change necessary to live the life I wanted.

Part of empowerment is understanding the relationship between what one wants and what actually happens in life. I believe that we go through a grieving process when we find that what we get doesn’t quite match up with what we wanted. Our dreams are an idyllic picture of the life we think will make us happy, and when things don’t live up to it, we grieve it as though it has died.

The lyrics to Muse’s Starlight sums this up far more succinctly and beautifully:

Our hopes and expectations
Black holes and revelations

While the idea of losing our hopes to a black hole’s void might be a little unsettling, there is a sense that one’s hopes and expectations are what initially lead us to a certain path in life, and the twists and turns of that path ultimately lead to revelation about what one truly needs for happiness.

I find this sentiment to be very relevant to raising a child with special needs. I’ve had a hard time wrapping my head around the autism bomb. I didn’t have any experience with babies before my son, so I had no idea what normal development looked like. Since my son is high-functioning, all the diagnoses were inconclusive. Not autistic, but just kind of. Just enough to place some serious obstacles in his development. And just enough to trigger the normal parental guilt: was there something we missed in his early development?

Throughout all this, I have fermented some very bitter feelings about other people’s families. On the one hand, I have been jealous of others’ normal babies; on the other, I’ve felt guilty because our son is so much better off than other children who are farther along the autistic spectrum. And I have unjustly felt that people raising normal children have it so much easier than we.

Only in the last couple of months, after observing normal babies’ development, have I begun to fully realize how different my son is, and how wrong my feelings have been. There was nothing we did that caused his condition. And raising a normally developing child is no more easy or difficult than a special needs child. All families have their challenges, and raising a child with special needs only presents a different set of challenges.

Piano noodler

Tuesday, May 29th, 2007

On Saturday morning, I was upstairs taking care of my morning hygienic needs when I heard the melody for Twinkle Twinkle Little Star plucked on the piano downstairs, followed by my wife clapping and congratulating. At first I thought she was teaching it to my son, but when I got downstairs I saw him alone at the piano, figuring out the melody all by himself.

All weekend long, he’s been playing the melody in different octaves over the keyboard. When he finishes he turns to look at us, and when we clap he puts his hands to his face and smiles — so proud and humble! I am certainly very proud of him.

Speech!

Friday, May 11th, 2007

Earlier I was hesitant to post about my son’s latest development since I didn’t want to pin too much hope on it. But after a few weeks, it is clear that he has decided it’s time to start talking.

This began with an increased interest in mimicry. After 4 1/2 years I guess those mirror neurons are finally starting to fire. While his consonants are not well developed, he is extremely good at following and repeating the cadence and syllables in both words and sentences. I know I’ve heard him say most of the consonants at some point in his life, so now it’s a matter of him discovering that he knows how to form them and where to put them in words.

A couple of weeks ago, he surprised me when he turned a page in a book, pointed at a picture of a whale, and said triumphantly, “Whale!”

Last weekend, for the first time, he responded to another kid on the playground. A little girl approached him and said “Hi,” to which he also said “Hi.” It may not seem huge, but for him to use a word in a socially relevant context is a major step.

He knows all of his colors and can count from 1 to 20, and he’s even counted into the twenties (though he seemed to think that twenty-ten makes far more sense than thirty; who am I to argue?). He’s pretty good at a number of animal names as well.

Just checking in

Tuesday, March 20th, 2007

Here is a vapid post to fill the space between less vapid posts.

The plum tree is blooming like crazy. I took some pictures this weekend, but the sky was overcast and white flowers against grey* sky is not so impressive. Last year it produced 2 plums, the first year in which it actually bore fruit. This year’s flowering is much more bountiful, and there are bees buzzing, so here’s hoping that this year’s crop will be much more, um, bountiful. Sweet sweet plums. When I was a kid I have a memory of riding home from swim team practice and stopping in front of a house with a plum tree and raiding its, um, bounty. I have never been able to choke down a store-bought plum since then. Like tomatoes, plums are fruits that absolutely must ripen on their host, otherwise they’re not worth eating. And unlike tomatoes, plums are actually worth eating.

The boy is gaining interest in talking. He has been mimicking “All gone” and “night night” though we don’t think he understands their proper context. He has been saying “no” a lot, mostly just to say it, but I’ve noticed that when he begins to get frustrated he starts to say “no.” So I think he understands the context of “no” to some degree. God knows he hears enough of it from his parents. But the fact that he’s listening and attempting to mimic is a very big development.

Developments such as this have been frustrating in the past. Just when I think he’s on the verge of expressive language, nothing happens. So I’ve been reticent to post on this new development because I don’t want to stir up my expectations.

* Ok I’m so pissed. Well not so much pissed as annoyed. And not so much annoyed as mildly amused. Firefox has an automatic spell-checking feature for when you’re writing in text boxes like the one I use here to post on this here blog. Apparently it objects to the proper spelling of the color grey. I absolutely refuse to publish anything with that abominable other spelling. Here I go to find out how to alter Firefox’s dictionary. Ok Crisis Averted.

Autism as a psychological variance

Thursday, February 1st, 2007

In my last post about autism, I linked to a video showing that while an autistic person may appear to “normal” folks as having little to no ability to communicate, they do indeed have highly developed interpretive and communicative skills. This video reminded me of a link from awhile back on BoingBoing where a research team posits that autistic people do not have a mental disorder so much as they are a variant of the human species: a different kind of person.

You can read and hear more about it here: Rethinking Autism. There is a twenty-odd minute audio file there that I encourage you to give a listen if you are interested in this subject.

My own experience with my son, and for that matter with myself, corroborates this new approach to understanding autism. Currently, the psychological community defines autism as a mental disorder (as defined by the Diagnostic and Statistical Manual) and as such, research into autism is focused on finding a cure. The research team interviewed in Rethinking Autism takes umbrage at that research paradigm, and argues that the model of autism as a mental disease is flawed. Instead, research should be focused on understanding what autism is. In the proposed research paradigm, autism is a variant within the human species in much the same way as homosexuality. Once we better understand autistic variance, we can address the organizational aspects of society that are problematic for autistic people.

One of the most frustrating aspects of parenting a child who is on the autistic spectrum is the problem of “fitting in” with society. Autistic people’s lives are difficult, not so much because of autism, but because it’s not socially acceptable to be autistic. If we have a greater understanding of the condition, then those who are afflicted would have an easier time finding their role within society.

Little windows

Tuesday, December 26th, 2006

I seem to have emerged from my pissy mindset, at least for a little while. We’ll see how long it lasts when I return to work tomorrow.

Here’s the problem: the small windows that I get to be with my son are at the absolute worst parts of the day. Both of us are crabby in the morning, and by late afternoon we’re both worn out by the day, and once again, crabby.

After many days and weeks of seeing only the crabbiness, I begin to believe that the small window through which I’m viewing contains the entire world. It’s simply not true, and thankfully my son has shown it to me over the last few days.

Most of the time, my son is in a pretty good mood. He knows tremendous joy, and knowing that gives me a deep optimism and sense of purpose for our future lives. He has lifted my spirits this Christmas, and I feel that sense of spiritual rebirth so rooted in the human archetype of the winter solstice.

Pissy

Monday, December 18th, 2006

I’ve been in a godawful mood for awhile now. So I’ve been staying away from blogging because I usually post a bunch of melodramatic crap that noone wants to read, the kind of stuff that embarrasses me when I look back from down the road a bit.

So I’ll post it anyway. Fuck myself.

Something got screwed up in my wiring. I can actually feel my brain fighting itself. The reptile brain at the bottom just wants to drive fast and beat things senseless, screw everyone else and the consequences. The conscious layers on top are always processing in overdrive, beating back reptilian impulses with arguments of morality and social order. An hour’s commute and I’m overclocked and overheating and I can’t escape. I need a vacation, not from work but from myself. And I haven’t even gotten to work yet.

It’s no wonder I have an autistic child. I gave him those genes. At some deep root level I knew from the beginning that any child of mine would have these problems. But I ignored the instinctive knowledge. It’s simply too horrific to face.

And so I emerge from the hourlong commute at the end of the day, only it’s not the end, it’s just the beginning of the next stage, the one where the four-year-old autistic child is overclocked and overburdened and overwhelmed, imprisoned within layers of faulty evolution, frontal lobe and neocortex struggling to regulate the reptile with fractured rules of consciousness. And I realize that he is a 4-year-old 9-month-old, and I wonder if at 20 years will he be a 20-year-old 2-year-old? With my patience void and the reptile creeping out, I wonder how anyone could survive this, and ultimately what is the point of everything?

He is broken, as am I. God fucked up.

It is one thing to rationalize this as a burden placed upon my family, some sort of character test designed by the universe. We must be strong people if the universe gave us this challenge. But the argument is flawed. Underneath it all is a little boy who has no choice, who lives the majority of his life in utter frustration and rage. He is so angry, and with good reason. The universe gave him a broken brain. God gave it to him. Made in God’s image, indeed.

And so we have freewill, that explains everything, right? That humans should suffer at the capricious whim of circumstance is simply proof that we possess the gift of freewill, for the ability to choose allows us to rise above circumstance. God simply set the universe in motion, and what took over is cruel indeed, cancer and illness and psychopathy and asshole drivers and amyotrophic lateral sclerosis. Need I mention George Bush?

The casual observer may conclude that within all this drivel is a cry for help or maybe an individual who is on the verge of breaking, of “going postal.” Not to worry, I don’t work with the postal service. I’m just in one of my moods.

Mannerisms

Friday, December 8th, 2006

Yesterday at breakfast, my son was sitting on my lap munching on cereal while I ate my own. As I was chewing, he looked up at me and was suddenly very interested in my mouth. He put his finger on my lips, and it seemed to bug him that I was chewing with my lips closed, so I opened them and make loud smacking noises which he immediately mimicked.

That night, he was again eating cereal while I ate dinner and he looked straight at me while he chewed, and I realized he was chewing with his mouth closed. His deliberate, sustained eye contact and slight smile told me he was saying “Look Dad, I eat just like you!”